Hi, I’m Judy from Australia
When were you first diagnosed, and what was your diagnosis?
I was first diagnosed in 2012 with rheumatoid arthritis.
How difficult was it to obtain a diagnosis?
For me, it wasn’t difficult at all. I had very visible inflammation in my hands and feet, was struggling to dress myself, and had difficulty walking. I had a blood test at my local GP and had a high rheumatoid factor. They thought it was rheumatoid arthritis, then I was referred to a rheumatologist in Canberra for confirmation.
How has your disease impacted you?
I am on disability along with other conditions. I was studying at the time I was diagnosed and was forced to finish up my studies at the time. I now do my advocacy work from home. I live with daily chronic pain, take medications, and see multiple medical professionals on a regular basis.
Have you tried drug therapies? Have they been successful?
I have tried intravenous infusion biologics and self-injections, and I am currently still on self-injection at home. Results remain promising for that condition though I still have days with pain, but that’s expected in some ways. I’m thankful for each day, as many don’t have that at all. I am thankful for Zoom and social media and writing and the opportunity to be able to connect with others.
What would you want researchers to know about the patient experience?
I want researchers to know that I want something to be available that really helps with fatigue and concentration, as well as pain and discomfort. An all-in-one magic pill, if you will. Mate, I tell you that would be so great! Not that you guys don’t do amazing work already, it’s just something like that would really top it off.